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Living Beyond Breast Cancer
United States
Приєднався 15 кві 2009
Living Beyond Breast Cancer is a national nonprofit organization that seeks to create a world that understands there is more than one way to have breast cancer. To fulfill our mission of providing trusted information and a community of support, we offer on-demand emotional, practical, and evidence-based content that is meaningful to those newly diagnosed, in treatment, post-treatment, and living with metastatic disease.
For over 30 years, Living Beyond Breast Cancer has imparted wisdom and connection via conferences, events, a peer-to-peer helpline, and more. Today, we remain committed to creating a culture of acceptance-where sharing the diversity of the lived experience of breast cancer fosters self-advocacy and hope.
Learn more at LBBC.ORG.
For over 30 years, Living Beyond Breast Cancer has imparted wisdom and connection via conferences, events, a peer-to-peer helpline, and more. Today, we remain committed to creating a culture of acceptance-where sharing the diversity of the lived experience of breast cancer fosters self-advocacy and hope.
Learn more at LBBC.ORG.
Breaking News: Updates from the 2024 ASCO Annual Meeting
The Annual Meeting of the American Society of Clinical Oncology brings together global cancer experts to share the latest innovations in cancer research and education. The theme of this year’s meeting is The Art and Science of Cancer Care: From Comfort to Cure.
During this webinar, medical advisory board member Rita Nanda, MD provides an overview of the findings presented at the 2024 meeting and how the latest breast cancer research impacts you.
Find more updates from ASCO and the latest on breast cancer information on our website: www.lbbc.org/news
During this webinar, medical advisory board member Rita Nanda, MD provides an overview of the findings presented at the 2024 meeting and how the latest breast cancer research impacts you.
Find more updates from ASCO and the latest on breast cancer information on our website: www.lbbc.org/news
Переглядів: 375
Відео
ESR1 testing: What you need to know
Переглядів 3783 місяці тому
If you have been diagnosed with estrogen receptor-positive, HER2-negative metastatic breast cancer you may develop an ESR1 mutation after progression on endocrine therapy. ESR1 mutation testing can help you and your healthcare team make decisions about the most effective treatment options for you. Elenora Teplinksy, MD, Head of Breast and Gynecological Medical Oncology at Valley-Mount Sinai Com...
Jamie’s story: Body confidence after surgery
Переглядів 3025 місяців тому
Facing a breast cancer diagnosis at 31, Jamie discovered new ways to exercise and thrive after revision surgery. Learn how she finds strength and confidence in her body. Ready to BeACTive with Jamie? Join her and other real members of our community for BeACTive, Living Beyond Breast Cancer’s series of empowering workouts for people with breast cancer. ua-cam.com/play/PLy56aUjhRF4kKoUrIAy-l4ldFo...
Megan R’s story: Redefining exercise goals during breast cancer
Переглядів 2615 місяців тому
Megan R, a marathon runner, is redefining her fitness expectations and finding a new joy in exercise during treatment for an early-stage breast cancer recurrence at 46. Ready to BeACTive with Megan? Join her and other real members of our community for BeACTive, Living Beyond Breast Cancer’s series of empowering workouts for people with breast cancer. ua-cam.com/play/PLy56aUjhRF4kKoUrIAy-l4ldFob...
Monica’s story: Regaining control after breast cancer with exercise
Переглядів 685 місяців тому
A diagnosis of estrogen-positive breast cancer at 54 reshaped Monica’s perspective, making exercise about movement and regaining control of her life. Recently, she’s been trying something new that fosters a shared experience with others who have been impacted by breast cancer. Ready to BeACTive with Monica? Ready to BeACTive with Nancy? Join her and other real members of our community for BeACT...
Nadiyah’s story: Moving beyond lymphedema
Переглядів 2845 місяців тому
Facing a breast cancer diagnosis at 29, Nadiyah discovered new ways to exercise and thrive. Learn how she is becoming more active and incorporating fitness into her life while she navigates lymphedema and sciatica. Ready to BeACTive with Nadiyah? Join her and other real members of our community for BeACTive, Living Beyond Breast Cancer’s series of empowering workouts for people with breast canc...
Nancy’s story: Healing through movement amid breast cancer challenges
Переглядів 1595 місяців тому
Nancy, a dance and movement psychotherapist, thrives through movement, navigating difficult emotions in the face of a metastatic breast cancer diagnosis. Though breast cancer impacts her endurance and stamina, especially after developing lymphedema, Nancy remains committed to moving her body for expression and fitness. Ready to BeACTive with Nancy? Join her and other real members of our communi...
Amanda's story: Coping with hormonal therapy side effects
Переглядів 1485 місяців тому
Amanda, a working mom, recognizes the power of exercise in relieving stress and anxiety as well as breast cancer treatment side effects. A diagnosis of early-stage breast cancer at 40 prompted Amanda to prioritize her health and find ways to cope with the effects of anti-estrogen therapies to prevent recurrence. Ready to BeACTive with Amanda? Join her and other real members of our community for...
Bobbi’s story: Elevating Black health
Переглядів 1565 місяців тому
Facing a breast cancer diagnosis, Bobbi, discovered new ways to exercise and thrive. Learn how she overcame the challenges that came her way through the transformative power of exercise, love, and advocacy. Ready to BeACTive with Bobbi? Join her and other real members of our community for BeACTive, Living Beyond Breast Cancer’s series of empowering workouts for people with breast cancer. ua-cam...
Megan D’s story: Fitness, friends, and feeling good
Переглядів 1795 місяців тому
Facing a breast cancer diagnosis, Megan discovered new ways to exercise and thrive. Hear how she adapts her love for fitness to build community, connect with friends, and reclaim well-being. Ready to BeACTive with Megan? Join her and other real members of our community for BeACTive, Living Beyond Breast Cancer’s series of empowering workouts for people with breast cancer. ua-cam.com/play/PLy56a...
Ask the expert: Updates from the 2023 San Antonio Breast Cancer Symposium
Переглядів 9056 місяців тому
Get the latest information on breast cancer research from the 2023 San Antonio Breast Cancer Symposium. Jean Sachs, CEO of Living Beyond Breast Cancer talks with Stephanie Graff, MD FACP, Director of Breast Oncology at the Lifespan Cancer Institute at Brown University and Toni Willis, a patient advocate on how the latest research impacts those with an early-stage and metastatic breast cancer di...
Personalized medicine for breast cancer: What you need to know
Переглядів 3276 місяців тому
Unlock the power of personalized medicine with genetic and genomic testing. Generosa Grana, MD, FACP and Evelyn Robles-Rodriguez, DNP, APN, AOCN of MD Anderson Cancer Center at Cooper discuss the importance of these tests, their role in breast cancer, and how they impact your treatment path, you, and possibly your family. In addition, you will learn how to advocate for yourself and play an acti...
Medicina personalizada para el cancer de seno: Lo que necesitas saber
Переглядів 566 місяців тому
¡Desbloquee el poder de la medicina personalizada con las pruebas genéticas y genómicas! Únase a las expertas Evelyn Robles-Rodriguez, DNP, APN, AOCN, y Generosa Grana, MD, FACP, en este video, donde desmitifican estas pruebas, su papel en el cáncer de mama y su impacto en su familia. Aprenda a defenderse y superar las disparidades en la atención médica. Míralo en inglés: ua-cam.com/video/vn1AH...
Part II: Managing treatment side effects of anti-estrogen therapies
Переглядів 8497 місяців тому
Part II: Managing treatment side effects of anti-estrogen therapies
Part I: Understanding risk of recurrence: Tests and treatments
Переглядів 1,3 тис.7 місяців тому
Part I: Understanding risk of recurrence: Tests and treatments
In this together: LBBC caregiver initiative
Переглядів 1997 місяців тому
In this together: LBBC caregiver initiative
Gina's story: Family, advocacy, and making meaning
Переглядів 2137 місяців тому
Gina's story: Family, advocacy, and making meaning
Stephanie's story: Answering the call for a community in need
Переглядів 2317 місяців тому
Stephanie's story: Answering the call for a community in need
Dana: Beauty, confidence, and inclusion
Переглядів 1427 місяців тому
Dana: Beauty, confidence, and inclusion
Ali and Abby: Making an impact in the breast cancer community
Переглядів 5587 місяців тому
Ali and Abby: Making an impact in the breast cancer community
W1:D2 Upper body strength & balance
Переглядів 17 тис.8 місяців тому
W1:D2 Upper body strength & balance
Very helpful video.
To know in Tamil language
I am having rare iimmune check point inhibitor related neuropathy and cholangiopathy- with everything stopped from 1 + month now - the liver enzymes are still up and down and up again.... I am super health and doing everything iincluding organic plant based 99% except an egg once in a while and I exercise daily... (walking and biking)....
A caring Doctor is noe truly a rare thing. Bless you.
My cancer is HER 2 neg. Estrogen positive plus squamous cell 10 per cent. Surgery done plus 22 lymph nodes removed six had cancer cells. Any recommendentations? tumour grade 3.
Thank you for your comment. Here is a link to more information about HER2-negative breast cancer on our website. www.lbbc.org/about-breast-cancer/treatments/targeted-therapy/for-triple-negative Since we are unable to answer specific medical questions or provide medical consultation, we encourage you to speak to your team of providers to get answers based on your unique medical situation. Thanks again for your comment and we hope this information is helpful to you.
Can you please provide what kind of exercise is safe to do for osteoporosis with bone meds spread to spine. Thanks for sharing
Thank you for your comment, @veenathummala6469. Here is a link to more information about exercise on our website, and a link to our BeACTive exercise videos for people with breast cancer: www.lbbc.org/about-breast-cancer/wellness-body-image/nutrition-exercise www.lbbc.org/about-breast-cancer/wellness-body-image/nutrition-exercise/exercise/beactive-exercise-series Since we are unable to answer specific medical questions or provide medical consultation, we encourage you to speak to your team of providers to learn more about exercise and bone mets and to get answers based on your unique medical situation. Thanks again for your comment and we hope this information is helpful to you.
Hi, the first doctor indicated that radiation is used to stop breast cancer in the bone from growing, but the second doctor mentioned only given for pain, did I understand this correctly?
Thank you for your comment @christineavarro7641. Here is a link to more information about radiation on our website. www.lbbc.org/about-breast-cancer/treatments/radiation-therapy Since we are unable to answer specific medical questions or provide medical consultation, we encourage you to speak to your team of providers to learn more about this concern and to get answers based on your unique medical situation. Thanks again for your comment and we hope this information is helpful to you.
I am so glad I found these workouts! They are perfect for me
Thank you @wiebkepapenfus4189 We are glad you found this workout series helpful. You can find more reroutes for exercise and nutrition on website here: www.lbbc.org/about-breast-cancer/wellness-body-image/nutrition-exercise
They are so expensive to purchase. We are ALREADY going through a lot and having to pay so much for a bra so that we can mentally feel better is such a jab. YES, I did order one and didn't care for the fit or the sizing; so I found a bra that did the same thing at TARGET and provided a better support. Please make these type of bras MORE affordable, we are just trying to make it.
Thank you for your comment. We're glad you found a solution that works for you. If you still need bras, you can find resources for free, buy one get one, and discounted post-surgery bras, as well as information on insurance coverage of these garments here: www.anaono.com/blogs/dressing-room/free-bras-for-breast-cancer-survivors-via-pink-warrior-advocates Good luck!
Thank you.
Dr. Copit took care of my reconstruction over 20 years ago and then , my daughter 16 years later. He is a gifted and awesome surgeon. God bless him.
Dr. Copit took excellent care of me and 16 years later , he took excellent care of my daughter. God bless him.
I had a lumpectomy for LCIS. Can that morph into invasive
Thank you for your comment. Here is a link to more information about lobular breast cancer on our website: www.lbbc.org/about-breast-cancer/types-breast-cancer/lobular-breast-cancer Since we are unable to answer specific medical questions or provide medical consultation, we encourage you to speak to your team of providers to learn more about this concern and to get answers based on your unique medical situation. Thanks again for your comment and we hope this information is helpful to you.
Jennifer Frenke from Cobourg ?
Thank you for your comment. This video features Jennifer Schelter.
I came across your channel and I’m so happy that I did❤I’m trying to recover from three years of a Fighting breast cancer alone😊
Thank you for your comment. We're so glad you found us and found the content helpful. Below is a link to some information about our online support groups: www.lbbc.org/about-breast-cancer/emotional-health/online-breast-cancer-support-groups Thanks again for your comment and we hope this information is helpful to you.
Which cold cap did you use ?
Thank you for your comment. Here is a link to more information about cold capping on our website, as well as some personal stories. www.lbbc.org/about-breast-cancer/side-effects/hair-loss/scalp-cooling-help-prevent-hair-loss Since we are unable to answer specific medical questions or provide medical consultation, we encourage you to speak to your team of providers to learn more about recommended cold capping therapies based on your unique medical situation. Thanks again for your comment and we hope this information is helpful to you.
I don’t know how I could be diagnosed with stage for breast cancer last April I had stage 1b1 scamocell cervical cancer when through chemotherapy total hysterectomy and radiation plus bracky therapy. I October 2023 I was told I was cancer free it was all gone. 3 months later I have a pet scan and I’m told I have Her2 positive er and pr negative stage for Brest cancer after a biopsy. There is no cancer in my breast. It’s in my liver virginal wall stomach. They can’t find the primary what could have caused this. None of the cancers were more than 16mm. I have since had paclitaxel and trastuzumab pertuzumab in combination. I have been to,d I have to be on trastuzumab and pertuzumab for the rest of my life. My question is how could this happen. The second question is there a vaccine coming out for someone like me if so when.
Thank you for your comment. It's difficult to hear that you may need to be in treatment for the rest of your life. Here is some additional information on coping that may be a comfort: www.lbbc.org/about-breast-cancer/emotional-health/emotional-stages-cancer-diagnosis Since we are unable to answer specific medical questions or provide medical consultation, we encourage you to speak to your team of providers to learn more about your option, including any vaccines currently in development, and to get answers based on your unique medical situation. Thanks again for your comment and we hope this information is helpful to you.
@@LivingBeyondBC thank you so much
Halleluja
This was so informative. It always calms me down when listening to an objective fact based analysis of BC recurrence risk. Based on this information, my risk of recurrence is relatively low.
But the before and after look the same!
Rest in peace, Sheila.❤
Sun ☀️ is burning your skin
Scarring 😐🫤😕😮😯😵
Oils would be good for your skin
Sunscreen is not bad for then skin buy one without chemicals and dye
I would also wear earrings and makeup 💄
I would go for breasts implants and breasts reconstruction
I would never wanna remove my breasts from where it belongs
Tattoos are art 🎨 but i would put any on my chest or arms or legs
Dyes are amazing without chemicals
Violet
Lavender 🪻
Aloe vera gel
Dark or light skin
Why remove your lovely 🌹 breasts 1:20
Lovely❤
I will never remove my breasts
Thank you sista/docs. Extremely helpful.
Glad it was helpful!
I was able to cure my bone cancer permanently using Dr. Obehi Herbal Home's herbal remedy on UA-cam......
I was able to cure my bone cancer permanently using Dr. Obehi Herbal Home's herbal remedy on UA-cam.😊😊..😊
And still 6 years later they dont know what to do with the results of these ctcs tests
What is the name of the hair gel you use please and congratulations on getting through your chemo
How come this testing isn't recommended for early stages?
Thanks for your question. ESR1 mutations are most often found in advanced or metastatic breast cancer. You can learn more about this test here: www.lbbc.org/about-breast-cancer/testing/esr1-mutation
What are good exercises for feet?
Thank you for your comment. Here is a link to more information and resources about exercise on our website. www.lbbc.org/about-breast-cancer/wellness-body-image/nutrition-exercise/exercise Since we are unable to answer specific medical questions or provide medical consultation, we encourage you to speak to your team of providers to learn more about exercise options and to get answers based on your unique medical situation. Thanks again for your comment and we hope this information is helpful to you.